Monday, June 22

Living with Invisible Chronic Illness

Sick and tired of being sick and tired?
You are doing what you can to eat better, cut back on the caffeine, slow down, exercise more, and just take a deep breath. But isn't there something else that would help you fight back against the fatigue that often accompanies the never-ending "to-do" list?
What's more, lack of energy becomes a vicious cycle. More folks today report only fair to poor or very poor quality of sleep. Yea, tell me about it, toss and turn with worry half the night. The problem is further compounded by the fact that the majority of us who report everyday fatigue and loss of energy admit they don't get the minimum Recommended Daily Allowance (RDA) of vitamins and minerals from their diet even one day per week! Who has time to eat a balanced meal? Who has time to make a balanced meal, when you're tired, you don't want to cook. You just wander around doing nothing productive. Cleaning a bit, straightening up a tiny bit. Making sure your kids are fed, garden is watered. Fibromyalgia is a disorder classified by the presence of chronic widespread pain and a heightened and painful response to gentle touch. Other core features of the disorder include debilitating fatigue, sleep disturbance, and joint stiffness. In addition, persons affected by the disorder frequently experience a range of other symptoms that involve multiple body systems, including difficulty with swallowing, functional bowel and bladder abnormalities, difficulty breathing, diffuse sensations of numbness and tingling.
Fibromyalgia is considered a controversial diagnosis, with some authors contending that the disorder is a ‘non-disease’, due in part to a lack of abnormalities on physical examination, objective laboratory tests or medical imaging studies to confirm the diagnosis. So it IS an invisible illness, which is funny because I keep going to the Doctors, which I have grown to hate by the way! They keep telling me, No, No, No nothing the matter. Go home. Relax. Bla bla bla bla bleah. I need to catch a break, It depresses me. Which worries me. What a cycle! What a crappie life to be "living" And yes, i have tried eating better, I try all the time. I have cut out alcohol. I have cut out sugar. Exercise? Yes, I used to ride a bike 20 miles a day. No luck there.

1 comments:

Lisa Mc said...

Oh, that sucks. I'm sorry you're in pain and not sleeping. There might be a study group on this in your area. Here's a listing I found. Maybe someone here could be helpful.
http://articles.directorym.net/Treatments_for_Fibromyalgia_Oregon-r958115-Oregon.html